Alin's Site

Alright people, before you even read this and think I am a total nutcase, which I am in some ways but not in this way I suggest you read about Objectum Affectionism.

Mel1's birthday card

I wish my harness Mel1 a happy fourth birthday. She has moved across two bodies and now resides in her third body after her first two did not stand up to how tight I like to wear my harness, and also my spasticity. Her current body is made by Bodypoint and is the most durable in the world. Mel1 went through two bodies in her first two years of her life. Anywho I wish my lovely Mel1 a wonderful birthday. I still have her old bodies, and she travels to them sometimes for snuggling up with me with a different texture.

Mel2's birthday card

My headrest Mel2 is also four years old and she is due for a new body but will keep this body too, just like Mel1 she will travel between the two bodies. The same issue is with this body as is what happened with Mel1 sort of, her lateral rod assemblies wore out over time because of how tight I like having the laterals. I super glued them on her current body at an extremely tight setting and the only way to loosen or tighten them is by way of using an allen wrench. Whereas before she wore out I could release the rods by way of two slide releases. But adjusting them required the allen key. So Mel2 will be receiving a new body soon.

Jenny’s birthday card

My Miami-J Cervical Collar Jenny is now two years old. She was first given to me in the hospital by Ballert Orthopedics, and she immediately took a loving place in my heart. She helps me with my neck pain quite often and even when my neck does not hurt I still will have her on because, it feels good to have her holding my neck tightly. So I definitely love her!

So why is this post so late? Well yesterday morning and this morning so far have been disaster’s. Yesterday  woke up at 8:00 AM and in a split second after waking up I spasmed so hard I ended up throwing myself from my bed and onto the floor, hurting my hip, pelvis, and back. And even managing to give my head a good whack! I was so worried that I had gotten a hairline fracture or a compound fracture on my pelvis or hip,  but I didn’t go to the ER, and I loaded up some Morphine into me. When the Morphine wore off I just had a headache and solved that with a heat pad to the back of my head.

Then last night I began hacking and was running a fever of about 99.7 worrisome, big time. I hacked and hacked and was suctioning like mad pulling secretions from my lungs directly with a suction catheter and going in very deep and ‘blind bouncing’ it off of my carina and into each lung’s major bronchial tree. After sufficiently cleaning my lungs out and letting myself rest I woke up this morning at 6:00 AM with a 98.6 temp, yay! So I call that a “Zero Day Infection / Pneumonia”

Oh boy I am really paying for that Morphine I took yesterday. Extremely constipated, in fact, I think the below YouTube video perfectly explains my situation, note: I didn’t make it nor do I own it’s rights!

All this crap being said; this is why I didn’t get this post up yesterday, when I wanted to! Oh well. Better late than never!

By the way, there’s lots of photos so click each photo above to see more!

Greg strapped in and ready to go All of us in coats LOL

Man what a busy week. Monday one of my friends from NWSRA Bowling that I met in 2008 came over to visit. I have not seen Greg for a very long time; in fact, he was in a totally different wheelchair the last time I saw him., and he had a different phone and different tech. He now has an iPhone 4, and a Levo Combi wheelchair that is pretty cool, allows him to stand up and all that. My Permobil can do that too but I can’t get that stuff installed because of the amount of positioning straps I have on my wheelchair and because of my low muscle tone. The standing function doesn’t work with moulded seating systems either, Greg’s system is a very basic seating system but none the less his chair is really cool. We had a fun time together talking geeky gadgetry also me and him brain stormed the idea for me to get my cell phone mounted onto my wheelchair.

Sending a text of success to Greg

Tuesday. Yeah! That’s my cell phone mounted on my Mount-N-Mover. What I did was pretty simple, I attached a pressure adhesive strip of hook and loop a.k.a industrial Velcro fastener to my Mount-N-Mover Quick Release Plate on the arm, made sure the laptop mount would go on. No problem, it slips right over the hook and loop. I then attached the hook and loop to my Cell Phone’s hard shell ‘holster’ and went ahead and did the attachment! Voila, mounted phone that can take a lot of bumps in the car and vibration of driving. It’s really durable, so I can use it as GPS when driving around outside this summer. My chair is now like a cop car! Another thing being really cool is that I have a satchel on my headrest with two Power Packs that I have my phone plugged into, one at a time. Both power packs will run me  for 12-16 hours of time before I even touch the phone’s battery! Now that is power! I can take a power outage any day! I used this mount at the Chicago Auto Show to index images and send texts during the show. You’ll see more of it in my photos from the show and news from the show below.

A picture of me with the FIAT girl

Wednesday, we woke up and headed out the door to the Chicago Auto Show 2012 Press Preview day one, out of the house early and back late in the evening I shot a whopping 190 something photos. They are all accessed by clicking the photo above. No the girl or leather suit unfortunately do not come with the purchase of a FIAT car. I was hoping that it was buy a car get a custom suit to go with it deal. Oh well. There’s heaps of photos and two videos that I did similar to the Chicago Auto Show 2011 VOLT interview

Michelle's Valentines Day Card

Well it might not be a holiday for many but it is for some. And it’s a classic in school classrooms where everyone passes around cards to each other’s desk. Well if you want to send me a card feel free to send a card. If you want to send one but don’t have my address ask for Shipping Clearance through the contact me form!

Jan 2012 Stats

Galaxy Nexus Logo

I got a Google Galaxy Nexus with my dads Verizon Upgrade point and sold my old DROID CHARGE to him. Talk about mercenary huh! Anywho I was a total idiot and stole the 32GB memory card out of his phone and exchanged it with the 16GB one from my camera. Stupid enough I formatted it. It took me until today to realize, crap all the photos and video are gone!!! I might eventually re-box it and re-unbox it but I’ll snap some pictures of me and my new phone eventually. Right now I’m too busy enjoying my new phone!

RIAA/MPAA Shut Down

Just cause my website is no longer in blackout mode doesn’t mean that the highly flawed SOPA and its sister bill PIPA are halted. The worst thing is that Protect-IP (PIPA) is going for a vote on senate floor next week! My blog does not cover politics, because politics does not affect my life. But, if SOPA or PIPA pass, it will affect everyone’s life. Especially people like me who ‘live’ on the internet. So I will be giving some limited coverage on SOPA and PIPA. Mainly just the breaking news stuff. Hit http://americancensorship.org/ and fill out the simple form to dispatch a letter to your senator to stop PIPA in it’s tracks. SOPA has been shelved for now so what we need to do is slaughter PIPA.

My Implements

Today, I was supposed to get my Moob ultrasounded but my throat has been hurting for the last 3-5 days. And well I found out why it was hurting today. I had a tonsil stone! Also known as a tonsillith. Anyway-removing them can be easy or difficult, in my case it was a rather difficult removal. One that would have probably needed a in office removal. Well I decided to pop out my logic and get inventive, if you can pull out a foreign object with suction then why not a tonsillith that is caught in the craters and nooks and crannies of the tonsil? I took that theory to the suction machine and powered it up, 200 MMHG wasn’t enough to bring it to the surface, only enough to make my tonsil red and irritated. I cranked it up to 350 MMHG and the tonsillith moved, some blood came too but it moved and came to the surface! I then grasped it with the tweezers and pulled the whole thing out. My mom then said she had to use the Bathroom, and I said what bathroom, oh you mean you need to use the OR? I packed up my equipment and headed back to my room. It’s 8:30 as of writing this and my throat feels so much better!

RIAA/MPAA Shut Down

SOPA and PIPA are two very badly made bills floating in the House and the Senate right now.

What you see above is what could very well come of this and many other websites on the internet. Sites you use daily like Facebook, YouTube, Ustream. Anything where a user can post potentially copyrighted content can get shut down by RIAA and MPAA.

My website uses fair use of some copyrighted stuff, but they don’t care. What you see above is what could remain of my website if SOPA / PIPA pass.

My website is blacking out tomorrow from 8:00AM till 8:00 PM part of the americancensorship.org protest.

We cannot let these bills out of congress. They must be destroyed, they are terrorism from our government against We the people.

http://americancensorship.org/

See Dead as a doornail

See the picture above? That’s the last open casket image of my poor old OneTouch UltraMini that died Saturday. I somehow think I spilled something on it, and well it’s fate is no power up when I put a strip in. I was asked to send it back for exchange after I received my new meter which was supposed to be today. Today I got test strips but NO METER! So I called up Lifescan, and they said it was BACKORDERED. Wait, repeat again. The packing list said METER. Well anyway the purple colored meters were backordered and I told them that I am hypoglycemic, and they said well we can overnight a different color. I was like no I want to pick it up at my pharmacy. I called up Lenny my pharmacy manager at Walgreens, and he was very cooperative and got it all arranged with them so that Mom could go in and what do you know, pick up a Purple meter like I wanted. My dead meter is off at the post office, and my new meter is in the photos above being unpacked and used for the first time, yay! I am happy to have my own working meter. Since I have been using moms since Saturday.

In other news, I have been having a hellish time with chronic hypoglycemia and episodes of excessive yawning from low blood sugar so I am starting to do blood testing 3-4 times a day ordered by my doctor and will be submitting results monthly to the doctor. Also using the testing to help me manage my hypoglycemia. I wonder what type of diabetes I am. Type three? The kind where the pancreas is too damn active!

Latexed and belted with Mel1 and 4 nearby

New to my blog, you might want to read objectum affectionism to make sense of the pictures and this post. Anyway on Thursdsay I had some time to myself and decided to do some of my more out of the ordinary sensory stimulation. I call this Intensive Stimulation and I find it to be the most relaxing and destressing thing I can do for my mind and soul, it also really just helps me feel happier. Anywho my Fiancee Angel Bird left her latex catsuit here because it fits me pretty well and she decided that I could have some fun with it. Indeed she was correct! I had 18 layers of fun to be exact! I first put on the latex suit. Then my blue PVC raincoat, 12 Neoprene sauna belts, a PVC corset, and three more belts to finish the outfit. I then proceeded to just enjoy myself taking pictures and relaxing and rubbing it all and enjoying the pressure and warmth and smell. Then I took off all the layers leaving myself in just my Fiancee’s latex suit’s soft smoothness too bad she wasn’t here to snuggle and kiss me. I miss her to bits and want her back here. Soon we will have it sorted out and be living together, that will be dream come true. Anyway once I was down to the suit I decided to have a little fun strapping into my wheelchair really tightly. I found that to be seriously relaxing, feeling the straps pull and squeeze me in the latex suit and just overall the ‘restrained’ feeling. It really got me very calm and I would have fallen asleep if I didn’t make the video below to show everyone my more unusual side of my Autism and Sensory Disorder that I call Intensive Stimulation.

Anywho I slept last night snuggled up with the latex suit against my cheek, it is so soft and smooth and warm. I wish my fiancee’s arms were there instead though. I wish my fiancee was here. Love you my Angel Bird.

Woke up at 5:00 AM and well felt quite nerdy so I did the nerdiest trach change E-Mail I could possibly do!

departure scheduled for 6:15 AM

actual departure from PAL (My House) 6:16 AM

Estimated arrival at LGH (Lutheran General Hospital) 6:45 AM

Actual arrival at LGH (Lutheran General Hospital) 6:43 AM

Registered at 7:02 AM

Pre op time 7:10 AM

OR transfer time 7:41 AM

OR start time 7:44 AM

Post op phase 1 8:17 AM

Post op phase 2 9:10 AM

Return to PAL (Home) 11:12 AM

So all in all it was a great trach change went through quickly without a hitch. I was whisked into the OR quickly given the nitrous to deaden my senses and get the IV line set and then the Sevoflurane was given to me. Doctor Walner did some cauterization and cut some tissue flaps and took a biopsy too.

It's Done

Well here we go. Tracheostomy countdown to 7:30 AM tomorrow morning. You read me right seven freaking 30 in the freaking morning. I have to be up at five in the freaking morning so we can be out of the house by six. geez. Sometimes schedulers like to screw me over it feels like. Anyway I am looking forward to the sevo.

Two Dogs One Leash

Yeah you saw the line above. You are probably laughing, but my mom said it this afternoon. ADT sent me an E-Mail reminder to test our alarm system in our house and mom was questioning if Daisy is deaf. I dutifully went to the system control panel and said, let’s test both at the same time. Within thirty seconds the system emitted its loud test beep over the siren speaker, Daisy jumped half to the ceiling! Well that’s how you kill two dogs with one leash! Two birds one stone meets two dogs one leash!