Alin's Site

RIAA/MPAA Shut Down

Just cause my website is no longer in blackout mode doesn’t mean that the highly flawed SOPA and its sister bill PIPA are halted. The worst thing is that Protect-IP (PIPA) is going for a vote on senate floor next week! My blog does not cover politics, because politics does not affect my life. But, if SOPA or PIPA pass, it will affect everyone’s life. Especially people like me who ‘live’ on the internet. So I will be giving some limited coverage on SOPA and PIPA. Mainly just the breaking news stuff. Hit http://americancensorship.org/ and fill out the simple form to dispatch a letter to your senator to stop PIPA in it’s tracks. SOPA has been shelved for now so what we need to do is slaughter PIPA.

My Implements

Today, I was supposed to get my Moob ultrasounded but my throat has been hurting for the last 3-5 days. And well I found out why it was hurting today. I had a tonsil stone! Also known as a tonsillith. Anyway-removing them can be easy or difficult, in my case it was a rather difficult removal. One that would have probably needed a in office removal. Well I decided to pop out my logic and get inventive, if you can pull out a foreign object with suction then why not a tonsillith that is caught in the craters and nooks and crannies of the tonsil? I took that theory to the suction machine and powered it up, 200 MMHG wasn’t enough to bring it to the surface, only enough to make my tonsil red and irritated. I cranked it up to 350 MMHG and the tonsillith moved, some blood came too but it moved and came to the surface! I then grasped it with the tweezers and pulled the whole thing out. My mom then said she had to use the Bathroom, and I said what bathroom, oh you mean you need to use the OR? I packed up my equipment and headed back to my room. It’s 8:30 as of writing this and my throat feels so much better!

RIAA/MPAA Shut Down

SOPA and PIPA are two very badly made bills floating in the House and the Senate right now.

What you see above is what could very well come of this and many other websites on the internet. Sites you use daily like Facebook, YouTube, Ustream. Anything where a user can post potentially copyrighted content can get shut down by RIAA and MPAA.

My website uses fair use of some copyrighted stuff, but they don’t care. What you see above is what could remain of my website if SOPA / PIPA pass.

My website is blacking out tomorrow from 8:00AM till 8:00 PM part of the americancensorship.org protest.

We cannot let these bills out of congress. They must be destroyed, they are terrorism from our government against We the people.

http://americancensorship.org/

See Dead as a doornail

See the picture above? That’s the last open casket image of my poor old OneTouch UltraMini that died Saturday. I somehow think I spilled something on it, and well it’s fate is no power up when I put a strip in. I was asked to send it back for exchange after I received my new meter which was supposed to be today. Today I got test strips but NO METER! So I called up Lifescan, and they said it was BACKORDERED. Wait, repeat again. The packing list said METER. Well anyway the purple colored meters were backordered and I told them that I am hypoglycemic, and they said well we can overnight a different color. I was like no I want to pick it up at my pharmacy. I called up Lenny my pharmacy manager at Walgreens, and he was very cooperative and got it all arranged with them so that Mom could go in and what do you know, pick up a Purple meter like I wanted. My dead meter is off at the post office, and my new meter is in the photos above being unpacked and used for the first time, yay! I am happy to have my own working meter. Since I have been using moms since Saturday.

In other news, I have been having a hellish time with chronic hypoglycemia and episodes of excessive yawning from low blood sugar so I am starting to do blood testing 3-4 times a day ordered by my doctor and will be submitting results monthly to the doctor. Also using the testing to help me manage my hypoglycemia. I wonder what type of diabetes I am. Type three? The kind where the pancreas is too damn active!

Latexed and belted with Mel1 and 4 nearby

New to my blog, you might want to read objectum affectionism to make sense of the pictures and this post. Anyway on Thursdsay I had some time to myself and decided to do some of my more out of the ordinary sensory stimulation. I call this Intensive Stimulation and I find it to be the most relaxing and destressing thing I can do for my mind and soul, it also really just helps me feel happier. Anywho my Fiancee Angel Bird left her latex catsuit here because it fits me pretty well and she decided that I could have some fun with it. Indeed she was correct! I had 18 layers of fun to be exact! I first put on the latex suit. Then my blue PVC raincoat, 12 Neoprene sauna belts, a PVC corset, and three more belts to finish the outfit. I then proceeded to just enjoy myself taking pictures and relaxing and rubbing it all and enjoying the pressure and warmth and smell. Then I took off all the layers leaving myself in just my Fiancee’s latex suit’s soft smoothness too bad she wasn’t here to snuggle and kiss me. I miss her to bits and want her back here. Soon we will have it sorted out and be living together, that will be dream come true. Anyway once I was down to the suit I decided to have a little fun strapping into my wheelchair really tightly. I found that to be seriously relaxing, feeling the straps pull and squeeze me in the latex suit and just overall the ‘restrained’ feeling. It really got me very calm and I would have fallen asleep if I didn’t make the video below to show everyone my more unusual side of my Autism and Sensory Disorder that I call Intensive Stimulation.

Anywho I slept last night snuggled up with the latex suit against my cheek, it is so soft and smooth and warm. I wish my fiancee’s arms were there instead though. I wish my fiancee was here. Love you my Angel Bird.

Woke up at 5:00 AM and well felt quite nerdy so I did the nerdiest trach change E-Mail I could possibly do!

departure scheduled for 6:15 AM

actual departure from PAL (My House) 6:16 AM

Estimated arrival at LGH (Lutheran General Hospital) 6:45 AM

Actual arrival at LGH (Lutheran General Hospital) 6:43 AM

Registered at 7:02 AM

Pre op time 7:10 AM

OR transfer time 7:41 AM

OR start time 7:44 AM

Post op phase 1 8:17 AM

Post op phase 2 9:10 AM

Return to PAL (Home) 11:12 AM

So all in all it was a great trach change went through quickly without a hitch. I was whisked into the OR quickly given the nitrous to deaden my senses and get the IV line set and then the Sevoflurane was given to me. Doctor Walner did some cauterization and cut some tissue flaps and took a biopsy too.

It's Done

Well here we go. Tracheostomy countdown to 7:30 AM tomorrow morning. You read me right seven freaking 30 in the freaking morning. I have to be up at five in the freaking morning so we can be out of the house by six. geez. Sometimes schedulers like to screw me over it feels like. Anyway I am looking forward to the sevo.

Two Dogs One Leash

Yeah you saw the line above. You are probably laughing, but my mom said it this afternoon. ADT sent me an E-Mail reminder to test our alarm system in our house and mom was questioning if Daisy is deaf. I dutifully went to the system control panel and said, let’s test both at the same time. Within thirty seconds the system emitted its loud test beep over the siren speaker, Daisy jumped half to the ceiling! Well that’s how you kill two dogs with one leash! Two birds one stone meets two dogs one leash!

Me and Mel3 are ready for the rose bowl

Those of you who don’t know about my objectum affectionism should click the link and read, or the majority of this post will not make sense. Anyway last night I had a serious Rett Episode, as far as my doctors are concerned. No one can figure out why it happened aside from tracing it to my Rett Syndrome neurological autonomic dysregulation. Around 2:00AM today I began to have some pulse ox problems, I kept desatting to 85-87% with my lowest saturation at 74% and longest breath holding / apnea spell lasting about maybe 40 seconds. I hooked myself up to my pulse ox to find this out when I felt my heart racing, it was around 100-130 during the episode. What did I do you may ask now? I quickly noticed I was having an episode so I got out my crash bag and pulled out my ambu-bag, if you haven’t seen an ambu-bag click the link. I do not use the mask, I connect directly into the ambu-bag and connect it to my oxygen concentrator on 6LPM or 100% oxygen. After using the ambu-bag to breathe for me while my brain and body were going through this episode I decided to go off the bag and oxygen and turn my ventilator on room air for the night. I hooked up to the ventilator and noticed that around 3:00 AM my heart rate and oxygen normalized. I was on the oxygen for a good 30 minutes. I had used Mel3 to listen to my lungs front and back, no diminshed breath sounds perfect, no pneumonia. So I disconnected from the ventilator and decided to see if I could hold my sats up myself, and I was able to. I slept with Mel3 around my neck because she is very comforting and relaxing to suck on and feel against my neck. I woke up this morning with her around my neck, and I woke up right on time to watch the Rose Parade with my girlfriend / fiancee. Sadly she is in California so she had to be up by 8 AM to watch it, but she slept in because she has a cold, I am praying she gets well fast. Anyway I watched for about ten minutes, and then she tuned in with me and we texted back and forth. And that pretty much was the excitement for today. Now, here’s to hoping tonight is trouble free with my O2 and heart rate!

Strapped for time

Me, Dad, and mom had fun last night with the whole new years 2012 countdown. We had some fake champagne from Martenellis sparkling apple cider which is great stuff and we enjoyed making funny photos and making some seriously artistic photos. It was great, though I really do wish my Angel Bird was here to celebrate with me. Holidays just feel empty without her here. We burned up the phone lines till near 4AM, and then finally I passed out exhausted. But, still it’s not the same as having her here. I need her here, I want her here. I took quite a few artistic photos, and strap related photos too. There are some funny strap photos in the beginning of the album!

Dec 2011 and 2011 stats

Statistics for last year were good. That is all I have to say about it.

Trach needs triamcinolone yet again.

Click the text above for a picture if you are inclined and interested in following my medical stuff. But instead of doing pure pictures I will post links so that people don’t get grossed out.