Alin's Site

The 2011 year went by fast! There were so many awesome things that happened in 2011 I cannot begin to summarize it so instead go back and read some old blog posts! That being said 2012 is right around the corner, and it will be a big year for me. I predict that my corporation will sell an invention and that I and my Angel Bird will be able to live together or at least have extremely frequent visits to each other’s domiciles. This being said the countdown is on. And there will be pictures from our household little new year’s party type thing with me mom and dad.

Just like I said in my past post; the cards probably won’t completely stop coming in for a while. I have people across the nation wanting to send me cards; this card shown above is from a person down in Texas. I helped him get his wheelchair harness and headrest. He is quite a great friend to have. I also got a card from Harold Ivey as per his yearly protocol. If you don’t know him hit leatheroaks.org You are warned though, his website contains some fetish content that may not be suitable for youngsters. No nudity though! He is a very sensory oriented person. I also got a card from my grandma with money in it! Who doesn’t like getting money around the holidays!

Well that did not go too badly. I really must say that with some careful work on the lyrics and things I am quite satisfied with myself and my singing and strappyness! I loved making this parody of Sleigh Ride With You. It was a royal pain in the butt getting it all to sound right and go the way I wanted it to, all in all I did at least nine rehearsal takes and then the final take’s that are the video above. Still, I had lots of fun making it Wednesday. There are annotations in the video if you’re in a big hurry to hear the perfect take, but I really recommend watching the whole video as it’s funny and awesome. This goes out to you girls and guys at Bodypoint! Gotta love the straps!

I have enjoyed the holidays so much, getting all the mail has been wonderful. Though I know that the mail is slowing and will stop and start going back to my usual Illinois Human Family Services stuff, everybody knows what HFS stands for right? And my Social Insecurity Administration stuff, I mean Security Administration. Ah so is life. I love getting non business mail though! This is one of the few things I really do enjoy about the holidays, Mail.

Well well well as you guy’s know my lovely fiancee / girlfriend Angel Bird / MyBigMouth was here over the holidays for a trip and I have been working on tagging and preparing the photos for online viewing on flickr. It’s not totally simple for me cause I am OCD about it. I have to have plenty of tags so I get a lot of views and also have to have pinpoint correct location data on the images! Anyway I took a lot of time to get all the images tagged and prepared and uploaded all in one great big batch! Whew that was a lot of work!

Merry Christmas everyone. Yes this post is 59 minutes late, oh well! I took a bunch of photos and uploaded them and I will probably sing a Christmas song soon. Here are the lyrics.

 

L

So this is Sleigh Ride Strapped In With You.

Just hear those seat belts jingling,
Ring-ting-tingling too,
Come on, it’s lovely weather
For a sleigh ride strapped in with you,
Outside the snow is falling
And friends are calling, “Your Strapped”,
Come on, it’s lovely weather
For a sleigh ride strapped in with you.

Strap Me In, Strap Me In, Strap Me In,
Real Tight, let’s look at the straps,
We’re riding in a wonderland of straps.
Strap Me In, Strap Me In, Strap Me In,
Real Tight, just holding your hand,
We’re riding along inside of a Of a strap show room.

Our cheeks are nice and rosy,
And comfy cozy are we,
We’re strapped in tight
Like two buckles of a harness would be,
Let’s take that strap before us,
And wrap a belt or two,
Come on, it’s lovely weather
For a sleigh ride strapped in with you.

There’s a birthday party
At the home of Farmer Gray,
It’ll be the perfect ending a perfect day,
We’ll be singing the songs
We love to strap without a single stop,
In the wheelchair while we watch
The buckles pop; Pop! Pop! Pop!

There’s a happy feeling
Nothing in the world can buy,
When they pass around the straps
And the leather,
It’ll nearly be like a big harness
By Bodypoint,
These wonderful things are the things
We remember all through our lives!

Just hear those seat belts jingling,
Ring-ting-tingling too,
Come on, it’s lovely weather
For a sleigh ride strapped in with you,
Outside the snow is falling
And friends are calling, “Yoo hoo”,
Come on, it’s lovely weather
For a sleigh ride strapped in with you.
Strap Me In, Strap Me In, Strap Me In,
Real Tight, let’s look at the straps,
We’re riding in a wonderland of straps.
Strap Me In, Strap Me In, Strap Me In,
Real Tight, just holding your hand,
We’re riding along inside of a Of a strap show room.

Our cheeks are nice and rosy,
And comfy cozy are we,
We’re strapped in tight
Like two buckles of a harness would be,
Let’s take that strap before us,
And wrap a belt or two,
Come on, it’s lovely weather
For a sleigh ride strapped in with you.
Strap Me In, Strap Me In, Strap Me In,
Strap Me In, Strap Me In, Strap Me In,
Whoa!

Yes I will do a YouTube video of me singing it, but I have to do some serious practice before I feel comfortable singing in front of the camera! Expect it to be out before new years, maybe!

It is completed, right in time for Christmas too! I have completed tagging, titling and uploading the 59 photos from Angel Birds first 10 day trip to Flickr for public availability. The pictures would have been up a lot sooner but there were some logistical hurdles in the way that were cleared. They are beautiful pictures so please do click above on the picture and take a look at me and my Angel Bird, my love of my life. ♥

NO I did not make the above video, but I am making a ‘Sleigh Ride With You’ Parody that will be ready soon, I know it’s kind of outside holiday time but it’s still winter and it’s still holiday time. I might get around to recording it tomorrow or Monday or Tuesday but either way I will have a parody focused primarily on straps and neoprene, two of my favorite things! Autistic Christmas Carols Volume one CD coming soon. Maybe not, but a YouTube video is definitely in order!

All right everyone, so as you know my wheelchair had a heap of straps on it. Ankle straps, Leg harnesses, Seatbelt, Harness. That’s a lot of positioning gear and some people have said to me. “There is no way on earth you could put more straps on that chair.” Or “You can’t put more straps on that chair, it has the most possible” These have been proven false. Of course, wrist restraints come to mind but in someone like me with functional arms, well most of the time functional, wrist strapping will not happen! But, a belly binder strap to snug up the laterals of my seating system and create pressure on my lower back, jackpot. We have broken the strap barrier and added another strap to the chair! Now, I have a total of seven straps on my wheelchair, counting each leg harness, and ankle strap as its own. If I count them as pairs then it would be a total of five straps! That’s a lot of straps! The belly binder or abdominal strap is a Bodypoint Monoflex. Now those of you who don’t know much about my Objectum Affectionate side won’t understand this part of the blog post, but the spiritual energy I felt come into this house was new, but very similar to Mel1 my harness, I obviously named this Bodypoint Monoflex Mel4. Delivered to me at 1:45 PM yesterday marks her birth date. That all being said hit the photo above for more photos.

More cards have hit the archives yesterday. Click above to see them.

Well Angel Bird / MyBigMouth has returned to California as of Yesterday. She was here from Saturday till Yesterday. We had heaps of fun together and took a whopping 398 photos in this trip! That’s a lot of imagery! I will be posting it all up on flickr in probably 50 photo batches to keep things flowing. There were some things that needed to be hashed out before I could post the 69 photos from her initial trip here in August, but now I can post those. I will get those pictures posted sometime within this week or next week, but I will need time to get all the tags, and titles sorted out. We had heaps of fun! We went to Willow Creek Church for the Christmas service and Rob the special, special needs seating guy got us seated and then asked me. “Anything else I can do for you. I said yes hand over a million dollars.” So the Christmas service goes on and at the end when it is just dragging a bit he approaches and hands me a check made out to Cash for 1 million dollars. I freaked. And I grinned, obviously it was phony, he told me that he has only 13 dollars and change in his account and it was a joke. But, I don’t think so much it is a joke as much as it is a symbol of what is coming. So up onto my visioning board it went and pictures were taken! We went out to IKEA instead of going to an Art Museum because the museum was closed on Monday but IKEA worked like an Art MUKEAUM for us because of how we made it artistic there, it was awesome! Just wait till you see the photos! We then went for dinner and went to Arlington Heights Christmas display where we took a heap of photos, and we took video. The video of that is below!

I got a real heap of christmas cards today! One for my parents and five in the mail for me! I am really getting to love that ‘thunk’ sound of mail landing in our mailbox outside, I rush to get the mail and look for stuff for me. Love all the cards from everyone. All of them are scanned and archived permanently.

This was cool! A unmarked truck came up to the driveway and a courier from Harry & David stepped out and came to the door, asked for my signature and handed me a relatively heavy box. Inside was an awesome gift arrangement from Medtronic. So nice of them for me doing awesome services for them. If you need an advocate just come to me.

My Christmas Card is now LIVE on the website for those who did not get postal delivery

To get the card click 2011 Christmas Card. over ——> there!!!

Well well my trach is having issues, so I had to Deck my trach with triamcinolone. These granulomas are getting annoying. Oh well not much I can do about it but add creams to get rid of them and zap them as authorized by Doctor Walner.

Some of you may know my girlfriend as MyBigMouth or Angel Bird, I had 10 days with her in August and she is coming in for five days four nights this holiday season. Awesome! I can’t wait, she is coming in tomorrow at 3:00 PM my time, so you know what that means! Another countdown clock! But before I get into that I just wanna say how much I love her, love her with all my heart and soul and I am so happy she is coming again this year to see me, I have wrapped a bunch of Christmas presents for her. I have a large collection of photos from her last trip, 75 to be exact! I will get even more photos this trip now that I have a super awesome camera! The original 75 photos from the last trip were held up because of some concerns, but a public release has been deemed acceptable, and thus I will need to hash through them and tag them and add location data and stuff, expect them to be available AFTER completion of this trip. You can probably expect me to post two huge photo sets simultaneously.

 

And now, I bring you the countdown clock!

I received another Christmas card today from the IRSF Christmas card exchange program. I love getting all the cards. To those of you sending me cards I am very thankful, wish postage costed less I would send to all but just wait, coming up on my website is an eCard that is a duplicate of my physical card, just print it out, no postage necessary!

Not much to say except a little downtrend in my visitor counts.

Above is YOUR first look at what will be a big set of photos on Flickr all documenting my history. It is from my big adoption book shown below.

All right people, watch your mailboxes! And not just your E-Mail boxes either! The real ones, where paper mail comes, the old fashioned Mail. I have sent a whopping 56 Christmas cards out this year and expect to send even more next year. Unfortunately, this being said All of you out there reading this who want a physical card have MISSED THE MAIL DEADLINE. That being said I will be posting an ecard that people can print out and fold and pretty much have my card without the whole mail bit.

Cards are incoming to the house as fast as they are going out! I got two cards today both from Rett families!

Those of you who know about my Objectum Affectionism will take this as no surprise. Last night I slept with ALL of my lovely objects. Mel1 my Harness, Mel2 my Headrest, Mel3 my Stethoscope, Emily my  30 pound Lead Apron, and Jenny my Miami-J Cervical Collar. It was a night of heavy sensory stimulation and it overall felt wonderful. I had a great time as did they. There are heaps of photos that I took. I slept very very good last night!

Well this was an AMAZING card I got from Bodypoint. You know, the company where Mel1 my harness was made. If you have not read much about Objectum Affectionism yet then you should! Anywho put into one sentence certain objects hold a spirit and I hold those objects very close to myself. Anywho the card I got from Bodypoint is absolutely amazing, it is signed by the whole office team there including Genny B. who is sadly leaving Bodypoint on the 16th of December. I will be keeping in touch with her and Bodypoint though!

 

I am continuing to make the envelopes for Christmas cards and prepare stuff for Mailing day of December 15th.