Alin's Site

Me wrapped up in 7 belts, it is very warm tight and comforting

Yesterday I got two new belts, I got a 4″ wide Red PVC one and a 5″ wide Hot Pink corset belt like my Black Corset Belt. I love them all. I am going to sleep in them as soon as I finish this post, very comforting. The pressure warmth and smells all relax me intensely, and so do the looks, the look is comforting for me since it is a look of something I am used to, something that is warm and comforting. I took 77 pictures, click the picture above to go to the photo set or use the multiple links to get to specific places in the photo set. I also did something pretty amazing, I put all 7 belts on at the same time! I made a long 45 minute video today overviewing each belt independently and then showing me putting on and taking off all 7 belts. Lots of fun! I love belts, I am addicted to them. Thanks to two anonymous friends of mine for sending them. Keep the belts coming!

My new red 4″ wide PVC belt and new 6″ wide pink belt and all 7 of my belts on at the same time

Flickr was a real pain in the ass and kept me up till 5:00 AM today trying to get my photos to upload correctly, GRR!!! BAD FLICKR!

Also please clear your cache as I have changed our link colors. Unvisited links now show in blue when hovered over, visited links are CHRONICALLY pink. Before hover links appear NORMAL in the brownish color.

Unvisited link when hovered over

Visited link, note the chronic violet color

09/29/2009 – Got to sleep too late, no recording.

Me in the van in tilt

Today I took some pictures and dad took some of me, I put them on flickr already. Click Above To See Them.

Oximetry Exception 09/25/09 – passed out / fell asleep before hitting recorder

I made a short video on how to save money on blank media by buying on eBay, here it is.

The Blog controls

Alright, In the last few weeks I have noticed a spike in new accounts but no accountable spike in RSS usage or FeedBlitz E-Mail subscriptions. I really need all readers to understand that “Registering” on the blog entitles you to NO UPDATES and ONLY COMMENTING ABILITY. With that said the commenting ability requires two pass authorization, authorization by a specialized computer system developed for over 5 years for the WordPress platform that catches 99% of spam, and also manual review of comments by me the administrator. Registering with the blog is OK with me. But follow the guidelines below to make sure you don’t get deleted

1. Make sure NOT to use a common spammer E-Mail service, any addresses ending with .ru domains are automatically placed in the blacklist bin for my approval, if you must use a .ru email please make a legitimate comment ASAP so I can review and authorize your account.
2. Make sure that if you register an account that you subscribe http://www.alinssite.info/E_Mailing_List/E_Mailing_List.html and or post a legitimate comment within 24 hours of opening it.

Fail to do both of the above will result in your account probably being swiftly deleted, (Less than 24 hours.) Those who’s account have been swiftly deleted but have had intention to post a legitimate comment may re-register and follow both of the above within 24 hours, I will not ban you unless you spam. If you spam you will be banned (from commenting), that simple!

Everyone can view and read, but to comment you need to follow the guidelines. Failure to follow them will result in forced edits and possible account closure (repeat offenses)

Comment guidelines are also below

• DO NOT use excessive profanity, never use god + profanity. damn is okay, anything above damn is subject to forced edit or deletion, this website is supposed to be at least semi-family friendly and is designed with research professionals in mind who may be researching me!
• DO NOT use external links, they will slow down the approval of your comment as I have to review their appropriateness
• DO Keep to the topic of the blog post and the above comments
• DO NOT Use excessive CAPITAL LETTERS AND PUNCTUATION!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! It’s kind of annoying and hard to read… see?
• DO NOT Leave personal information such as Instant Messenger (IM) handles, phone numbers, or addresses, or full names. Use Contact Me for tha
• DO NOT Give medical advice in the comments without a disclaimer, you MUST put “Not MD” or some other disclaimer or your comment faces deletion or forced edits
• DO NOT Personally attack other users and or anyone outside of this blog in your comments, they are available on google.
• DO NOT Post anything you wouldn’t want seen by the public (it all goes to search engines)

Last and not least, ENJOY MY BLOG.

This finishes our quick refresher on blog guidelines, I plan to make this continually available from the sidebar sometime soon, a notice as with all major changes and upgrades will be posted.

I’m burnt, EOF. Goodnight.

The X-Ray Machine and The Lead Aprons I Want To Steal

Yesterday I went for my spinal X-Rays which took 23 images and about an hour and a half worth of X-Rays, lots of positioning involved, and unfortunately snuggling. I  had to snuggle the cute radiology technicians. Oh and oogle and drool over some lead aprons I want to steal, you can see the lead aprons I was oogling above and  here. Yes I already have an awesome 30 pound sparkly blue PVC lead apron that you can see here but as with all addictions, I WANT MORE!!!

This completes my Spinal X-Ray order for this year, next time I need them is sometime in February to be repeated. And maybe then I will have the guts to steal the lead aprons maybe…

In other news

Alinssite and DisabledPlanet.net are safe, after some time spent in gridlock and argument with my web host we settled our problem, I am now able to update both as I have my FTP access back. Rocky Guido is a great guy. But as always Money can mess up friendships and cause big fights…

Orders List

• Sleep Study <SCHEDULED – OCT 5th>
• Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
• ABGs draw (IP) <WAIT SCHEDULING>
• Cardiac Monitor <IN PROGRESS>
• ETCO2 Monitor <PENDING FIGHT WITH INSURANCE… YAY!)

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

• Glasses <WAIT INSURANCE / MONEY>
• Pulmonary Functions Test (monitor respiratory status) <ORDERED SEP 2009>
• Endoscopy (ulcer in stomach possibly) <Pending requisition>
• New Wheelchair <PEND INSURANCE APPROVAL>
• Pacemaker / ICD <PENDING ORDER>
• Tracheostomy <PENDING ORDER>
• Spinal X-Ray Series <REORDERED FEB 2010>
• Breast surgery visit <PENDING SCHEDULING>

• Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (INACTIVE) (OP / IP at doctors discretion) <PEND SCHEDULING>
• Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]

Medical Logo

Today I got an oximetry report but until my webhost gives back my cPanel and FTP passcodes I cannot upload it or any other reports. Right now I Have as follows

09/20/2009 – OK

09/21/2009 – EXCEPTION DID NOT RECORD

09/22/2009 – OK

I am hoping my webhost sees me through in my apologies and gives back my FTP and cPanel passcodes otherwise my website and forum (DisabledPlanet.net) are pretty much gridlocked forever. This is major stressful for me, I did not get to sleep till 2:00 AM last night and I slept like crap to be honest, still feel tired as of right now.

Today we are going to take all of my spinal X-Rays and everything so that is good news. The pulmonary functions test will be end of this month instead of end of october.

• Spinal X-Ray Series <IN PROGRESS>
• Sleep Study <PEND SCHEDULING>
• Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
• ABGs draw (IP) <WAIT SCHEDULING>
• Cardiac Monitor <IN PROGRESS>
• ETCO2 Monitor <PENDING FIGHT WITH INSURANCE… YAY!)

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

• Glasses <WAIT INSURANCE / MONEY>
• Pulmonary Functions Test (monitor respiratory status) <ORDERED SEP 2009>
• Endoscopy (ulcer in stomach possibly) <Pending requisition>
• New Wheelchair <PEND INSURANCE APPROVAL>
• Pacemaker / ICD <PENDING ORDER>
• Tracheostomy <PENDING ORDER>
• Breast surgery visit <PENDING SCHEDULING>

• Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (INACTIVE) (OP / IP at doctors discretion) <PEND SCHEDULING>
• Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]

This is a emergency post. This may be my last post for a while. My web host and I are going through a large financial battle which may result in me losing my website. If that is the case I will be back online shortly. Either way please know that due to this all oximetry records are under an exception since yesterday until further notice.

Oximetry report while in my lead apron

Last night I slept very good. It was a chillier night which meant YAY! I can sleep in my lead apron! I decided to do an extremely analytical evaluation of last night’s sleep pattern to see how it positively affects my sleep. Apparently it positively affects induction (start of sleep) resilience (ability to fall back asleep if awaken) and maintenance (ability to stay asleep) but does not show much positive interaction with cardiac and oxygen status. Either way I slept really good last night and as always slept in a position much like the one above. Good smelling PVC on my cheek and lips and close to my nose. Something I love very much.

Click above to go to the oximetry area.

AS OF NOW I AM ON SERIES 3 OF ANTIBIOTIC

Nightly Oximeter Reports Page

As of right now I am declaring that I think I am going to be going onto my THIRD series of antibiotic to try to knock this pneumonia out of me. I got my FluMist intranasal flu shot yesterday, not sure if that is causing it. But my sleep is $!&$ed badly. I have been averaging 3-4 hours a night for the last several nights.

Ow my arms, weird position, MUST... SHOW... STRAPS!

Yesterday I received a cool set of leather wrist cuffs from my friend Jennyishere from WrongPlanet, she is a good friend of mine and knows I love anything leather and strappy. So she got me wrist cuffs, awesome! They feel great. I love the smell of them and the texture. See below for a video, Click above for photos.

Goodnight all!