Alin's Site

August 31, 2009

Opthalmology visit done, glasses to be announced, tile delivered, cardiac monitor picked up, unbox-video pending.

Filed under: Uncategorized — Alin S @ 4:43 PM
Opthalmology

Opthalmology

Today we went to my Ophthalmologist Dr. Mittelman who we did not see since 2001, SHEESH! Now I know why my eyes are trash now. I have no diseases known to the eye and nerve but the brain is messed and I still have some amblyopia and strabismus caused vision problems. In other words my vision is NOT up to spec, so he ordered for me to get glasses and seriously come back in a year, and he means it. We stopped going due to health insurance issues, now they pay for the visits on this policy but as usual they don’t touch the lenses. So please do donate to the fund so we can offset the cost of my glasses ($300 dollars) is our goal amount, if they are less then the money will remain in the fund for further use in assistive tech and medical.

We delivered that tile I painted for the pediatric unit, they are going to get that up there.

For all of you out there worried about my heart problems I now have a home telemetry monitor from Cardiomedix and my doctor which I am going to unbox and start using tonight, of course as usual I will record an unboxing / setup whatever video to the best of my ability. But as it requires a phone call to their center to set up it could be funky and have a start / stop.

Oh and the final part to my oximeter cables delivers tonight so expect video on that too.

Orders updated

  • Opthalmology visit (Check for neurological vision loss issues) <10:30 AM today. BLEGH!)
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Cardiac Monitor <PENDING SCHEDULING>
  • ETCO2 Monitor <PENDING FIGHT WITH INSURANCE… YAY!)

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Spinal X-Ray Series <WAIT PENDING>
  • Glasses <WAIT INSURANCE / MONEY>
  • Pulmonary Functions Test (monitor respiratory status) <ORDERED OCT 2009>
  • Endoscopy (ulcer in stomach possibly) <Pending requisition>
  • New Wheelchair <PEND INSURANCE APPROVAL>

A trip to Guitar Center and horrid sleep along with Ophthalmology appointment

Filed under: Uncategorized — Alin S @ 3:29 AM
driving up to guitar center

driving up to guitar center

Yesterday we went to Guitar Center to do some gear slutting (buying shiny new toys) and also buy some needed guitar strings for moms guitar which I had given her the wrong notes to tune to and due to my mistake one of her strings went TOING! But in all due course she needed new ones anyways. :D We had some fun there playing with all the gear and gadgets.

Click the photo above for… well… more photos!

As you can see it is 3:20 PM and I am still wide awake, thus my sleep for tonight is officially WHACKED. I will be lucky if I get to sleep by 4:00 AM. I must be in -12 GMT or something… Some weird timezone. As you see below my Opthalmology appointment is 10:30 AM, BLEGH! Reason I say BLEGH! is because of how borked (screwed) my sleep is for tonight.

Today I have an Opthalmology appointment which I did not record in the orders log, it is now in the log below. An endoscopy request was added and the ABGs draw was downgraded from red to orange.

… Ok, time to crash. EOF (End Of Function)

  • Opthalmology visit (Check for neurological vision loss issues) <10:30 AM today. BLEGH!)
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Cardiac Monitor <PENDING SCHEDULING>
  • ETCO2 Monitor <PENDING FIGHT WITH INSURANCE… YAY!)

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Spinal X-Ray Series <WAIT PENDING>
  • Pulmonary Functions Test (monitor respiratory status) <ORDERED OCT 2009>
  • Endoscopy (ulcer in stomach possibly) <Pending requisition>
  • New Wheelchair <PEND INSURANCE APPROVAL>

August 28, 2009

New cables! And videos!

Filed under: Uncategorized — Alin S @ 10:18 PM
The box from Amazon

The box from Amazon

Click the picture above for more photos.

Today I got some shipments of Medical nature. And Technology. As of now ALL of my further Youtube videos since the http://www.alinssite.info/2009/08/28/10-6-snow-leopard-on-my-macbook-pro/ post are HD! I got my oximeter trending cable and software but am waiting for a USB adapter to arrive on Monday. Youtube videos follow, IN HD!


My new HD DV Cable.


My new oximeter cable and software.

Rants page to stay, new vote open. Youtubes IN the blog

Filed under: Uncategorized — Alin S @ 1:48 AM

The poll is well done and over with. A bunch of people responded and I decided. The rants page was a GOOD idea.

Final results are available here.

Rants Page FINAL RESULTS

Rants Page FINAL RESULTS

I am now questioning after my 10.6 video, should I integrate (NON RANT) videos into the blog or not. And thus a new poll is born. This one will run for 10 days like the last poll.

10.6 Snow Leopard on my MacBook Pro

Filed under: Uncategorized — Alin S @ 1:41 AM

I got Snow Leopard for free from Apple due to my membership in the Beta program. Yay! See the video above for more information. I have had it installed since Wednesday night, but I couldn’t get the video out till I could get the cable!

New Knee braces received

Filed under: Uncategorized — Alin S @ 1:38 AM
A view from the top front

A view from the top front

Yesterday we received a medical item to help with my patella tracking issue and also with my overall knee pain. They are simple Neoprene knee braces to offer more stability to the joint whatever I am doing. They feel great too! Warm and Neopreney!

Click the photo to see more photos.

Pulmonary & Cardiology visits done

Filed under: Uncategorized — Alin S @ 1:12 AM
Yacktman Pavilion At Advocate Lutheran General Childrens Hospital

Yacktman Pavilion At Advocate Lutheran General Childrens Hospital

Two days ago I went to my Cardiologist and Pulmonologist. The news is as follows

Cardiac

Physiology = Normal, No heart surgery or transplant needed.

Electrically = May require pacemaker further analysis needed. Cardiac Monitor ordered.

Pulmonary

ETCO2 monitor NEEDED, must FIGHT for it.

New wrap sensors to be ordered

Data cable and stuff to arrive today, expect blog post.

Orders list is updated to reflect. Orders in black will be dropped on next revision.

Orders List

  • Cardiology follow up <COMPLETE> (2:00 PM August 26th)
  • Pulmonary follow up <COMPLETE> (3:40 PM August 26th)
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Cardiac Monitor <PENDING SCHEDULING>
  • ETCO2 Monitor <PENDING FIGHT WITH INSURANCE… YAY!)
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP/OP) <COMPLETE>
  • EKG (repeat due to 1 year passing since last EKG) (IP/OP) <COMPLETE>

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Spinal X-Ray Series <WAIT PENDING>
  • Pulmonary Functions Test (monitor respiratory status) <ORDERED OCT 2009)
  • New Wheelchair <PEND INSURANCE APPROVAL>

August 25, 2009

Birthday Day 11 (Technically) Received an awesome WIDE black leather corset belt!

Filed under: Uncategorized — Alin S @ 7:48 PM
A picture of me showing off the straps on my black belt

A picture of me showing off the straps on my black belt

Click the picture above to go to the gallery.

Today I got a dark brown envelope in the mail with my name on it and yet again a smaller package inside. This time it was a 5″ wide leather belt corset type thing with spandex. I put this one on my belly and noticed it’s a bit big for that so I put it on my chest and that was perfect, real tight and comfortable and great since I could smell the straps and suck on them. My gold belt works well on my belly and waist as you can see in the photo set. I also decided to go wild and wear all four of my belts at once, that felt real comforting to me having that all over pressure feeling. Just another gift that I fell in love with immediately.

Hmm, I am beginning to think I might have a belt addiction. Well at least it isn’t a shoe addiction like some people. I don’t get the purpose of the whole shoes thing. LOL! :lol:

August 24, 2009

Medical Orders list revision due to errors

Filed under: Uncategorized — Alin S @ 8:18 PM
Yacktman Pavilion At Advocate Lutheran General Childrens Hospital

Yacktman Pavilion At Advocate Lutheran General Childrens Hospital

I Do NOT have a surgery tomorrow. I have a neurosurgical follow up appointment tomorrow about my Baclofen pump. all other orders stand

Orders List As follows

  • Neurosurgical follow up <ACTIVE> (Tomorrow 2:30 PM)
  • Cardiology follow up <ACTIVE> (2:00 PM August 26th)
  • Pulmonary follow up <ACTIVE> (3:40 PM August 26th)
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP/OP) <WAIT SCHEDULING>
  • EKG (repeat due to 1 year passing since last EKG) (IP/OP) <WAIT SCHEDULING>

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Spinal X-Ray Series <WAIT PENDING>
  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)
  • New Wheelchair <PEND INSURANCE APPROVAL>

Medical Orders overhauled. Neurosurgery tomorrow, Respiratory and Cardiac tomorrow

Filed under: Uncategorized — Alin S @ 4:32 PM
Yacktman Pavilion At Advocate Lutheran General Childrens Hospital

Yacktman Pavilion At Advocate Lutheran General Childrens Hospital

Orders List As follows

  • Cardiology follow up <ACTIVE> (2:00 PM August 26th)
  • Pulmonary follow up <ACTIVE> (3:40 PM August 26th)
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • Voiding Cystourethrogram / Urodynamics – CMG <WAIT SCHEDULING>
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP/OP) <WAIT SCHEDULING>
  • EKG (repeat due to 1 year passing since last EKG) (IP/OP) <WAIT SCHEDULING>

we are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Spinal X-Ray Series <WAIT PENDING>
  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)
  • New Wheelchair <PEND INSURANCE APPROVAL>
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