Alin's Site

July 13, 2009

Medical orders tweaked, oximeter to deliver Wednesday

Filed under: Uncategorized — Alin S @ 6:56 PM

Medical Logo

Medical Logo

My new pulse oximeter delivers on Wednesday, which I am pretty excited about. Finally some continuous monitoring that I have control over and I can see real time changes in my condition. This may not mean much to many of you let alone ANY of you. But being I am a medical nerd, and am overzealous about monitoring my condition the oximeter will be very helpful to me and my respiratory doctor in monitoring my condition and trending my night time oxygenation and seeing if i need a BiPap, O2, or even a ventilator and trach.

  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • Priority Rehab Physician Visit <KNEE CT RESULTS & OTHER> (Wednesday July 15th 3:00 PM)
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> (TO DELIVER WEDNESDAY)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • Cardiology follow up <ACTIVE> (2:00 PM August 26th)
  • Pulmonary follow up <ACTIVE> (3:40 PM August 26th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • ETCO2 monitor (ordered by pulmonary) <DEAD> (Oximeter is deemed sufficient)
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP) <WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)
  • Nephrology follow up (monitor kidneys and urodynamics in more detail) <WAIT SCHEDULING>

July 12, 2009

A Series on Stimming: Intense heat outdoors

Filed under: Uncategorized — Alin S @ 6:36 PM
Me out in the sun on July 12th, hot sweaty day!

Me out in the sun on July 12th, hot sweaty day!

Today I went outside with dad while he did his yardwork and finally got the video on intense outdoor heat stimulation done for my big A Series On Stimming video series. The heat helps me relax majorly. I feel like a different person when I am in intense heat. My muscles are much more fluid and movable, and they even seem a bit stronger, like if you handed me a bag containing 10 lbs. of documents right now I bet I could hold it, maybe not lift it up into the air. But if it were a cold winter day I would be lucky if I can hold a 2.5 lb. bag of documents. My back and neck pain seek quite a bit of relief from intense heat. My mind too, as heat affects my Autism and is considered one of my self stimulation things. Throughout the time my heart rate was about 100 which is well below my normal resting rate of 120ish. I was outside for at least 2 hours today and came in with everything under my harness soaked in sweat, my back soaked, and whatever was under my seatbelt soaked. I wear quick drying clothes for a good reason apparently!

To view pictures click the picture above. For video go to the A Series On Stimming page and play the most recent video!

Birthday visits and how to do it, tweaked the page

Filed under: Uncategorized — Alin S @ 3:05 PM
My House

My House

If you are looking to visit me during my birthday week, or after, or any time in August follow the directions outlined in the My Birthday page. After the My Birthday page expires on August 31st and I see how well the Shipping & Visitation Clearance system works I will consider making a permanent page. If I do make a permanent page it will update for specific holidays. Otherwise it will allow people to request clearance for any time, besides doctors and other superseding events, shipment authorizations would be allowed year round but certain high value items may require a signature delivery option be used.

The new page is now live and will be live until August 31st, at which it will come down and I will More than likely make a permanent one.

You will also notice I have changed the wording around to work better in the Contact Me system and also be more streamlined!

Getting ready for my Birthday (corrected)

Filed under: Uncategorized — Alin S @ 9:26 AM
Happy Birthday Balloon

Happy Birthday Balloon

My Birthday Occurs on August 8th

Apologies for the messed up E-Mail, E-Mail does not support the countdown clock!

If you want information on how to give a gift go to the My Birthday page on my site.

The countdown clock will work when you go to the My Birthday page.

July 11, 2009

Behind The Scenes: Sleeping with belts and a scarf

Filed under: Uncategorized — Alin S @ 1:33 PM
My legs in my final sleeping position with the tight leather belts, scarf ready to go

My legs in my final sleeping position with the tight leather belts, scarf ready to go

It’s time for another Behind The Scenes post to show you some of the unusual things I do to help with my autism. The Behind The Scenes series heavily correlates with the A Series on Stimming video series and most or all of the Behind The Scenes posts will made into a video format for more insight at some point.

I have always been the type to sleep in a position similar to sitting in a chair, semi-fetal. I have also for my entire life craved intense pressure and even restraint. So I decided hmm I could restrain my legs in the sleep position I sleep in and have that nice secure immobilized feeling, and so I did. I really liked the way. The belt felt on my ankles especially, very soft and smooth yet secure and restrictive. The one up at my calfs; unfortunately, I couldn’t feel.

I have minor breathing problems, primarily allergic and asthmatic and hypo ventilatory, but that does not stop me from limiting my breathing purposefully to help me relax and even help my lungs remain strong. I have a polyester scarf that I absolutely love how it feels so I decided to wrap it around my head tightly, it was really warm and comfortable, no sound or sight, a nice world of my own; in other words. My breathing was rather easy though taking in a breath took a little bit more work, and the air was very warm when I inhaled or exhaled, mainly on exhalation. To keep the scarf from unwrapping in my sleep but to give me a quick escape in the event my breathing were to suddenly become impaired or something I simply laid on my side with my head resting on the end of the scarf, so all I would need to do is lift my head and pull at the end to quickly remove it.

This shows that restraint and sometimes respiratory limitation / control are helpful for me to sleep. Some other autistics may also seek help in respiratory limitation / control, but it can be very unsafe if not done correctly, and a fast escape is not thought through.

Click the picture above to see the gallery of images I constructed.

If you are autistic and are going to try respiratory control / limitation to help you relax PLAN IT OUT AND MAKE FAST ESCAPE METHODS. NEVER USE SOMETHING YOU CANNOT EASILY / QUICKLY REMOVE. ALSO CONSULT YOUR CAREGIVERS / PARENTS.

Here is where I get a bit technical about the respiratory control / limitation end, we all know that deep pressure and restraint have a positive effect on the autistic mind, but it is not widely known that respiratory limitation / control can in some autistics help. Some autistic children and adults have over active brains; they draw large amounts of oxygen to do huge amount of computation. Sometimes limited / controlled respiration is the key. Controlled / limited respiration is using conscious methods of controlling respiratory rate to reduce oxygen, which works in very few people or using some sort of object to limit air flow to and from the mouth and nose. Limiting air flow forces the brain and neurological system to analyze, is this enough for me to sustain if I slow down, or am I being asphyxiated. In my case and in some autistic’s cases, the brain starts to slow down to accommodate the lowered amount of oxygen flow. This does not mean reducing O2 saturation of the blood. This simply means forcing the whole body to use less O2. In other autistics and many normal people simply limiting air flow to and from the mouth and nose will trigger the asphyxiation response, in that case hyperventilation (rapid breathing) and overuse of O2 are present and the method should not be used under any circumstance.

This blog post is not medical advice. Seek help for Sensory Integration and Sleep Therapies from a certified professional before trying anything seen here. I disclaim any responsibility over actions arising from the reading of this post, or viewing of the images.

July 10, 2009

Ultrasound & Autism finalization

Filed under: Uncategorized — Alin S @ 3:18 PM
Medical Logo

Medical Logo

Today we went to the hospital for my KUB (Kidneys Ureters Bladder) ultrasound. We felt like employees arriving at 9:30 AM. After the ultrasound we went up for lunch and I had a smoothie. We then after that went to the Autism diagnostic finalization session. We spent about 45 minutes going through the results and it is final, I am CLASSIC AUTISM – HIGH FUNCTIONING AUTISM

This is very vindicating for me and my mom because now we have a final diagnosis that we can use to get proper therapies, help, and support for my autism. And also it can be globally recognized that I am autistic and have the paper to prove it!

Orders list is updated to reflect these two things, a new order for a Nephrology visit of unknown scheduling will be created.

The big bottom line here is I am OFFICIALLY DIAGNOSED AS HIGH FUNCTIONING CLASSIC AUTISM

  • Urodynamic Ultrasound <DONE>
  • Autism / Neurodiagnostic Results <DONE>
  • Priority Rehab Physician Visit <KNEE CT RESULTS & OTHER> (Wednesday July 15th 3:00 PM)
  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • Cardiology follow up <ACTIVE> (2:00 PM August 26th)
  • Pulmonary follow up <ACTIVE> (3:40 PM August 26th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • ETCO2 monitor (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP) <WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)
  • Nephrology follow up (monitor kidneys and urodynamics in more detail) <WAIT SCHEDULING>

July 9, 2009

New medical stuff on the board

Filed under: Uncategorized — Alin S @ 2:04 PM

Medical Logo

Medical Logo

Some new medical things have been scheduled. Including a Pulmonary and Cardiology visit.

  • Urodynamic Ultrasound <ACTIVE> (Friday July 10th 9:30 AM)
  • Autism / Neurodiagnostic Results <ACTIVE> (Friday July 10th 12:00 PM)
  • Priority Rehab Physician Visit <ACTIVE ULCER> (Wednesday July 15th 3:00 PM)
  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • Cardiology follow up <ACTIVE> (2:00 PM August 26th)
  • Pulmonary follow up <ACTIVE> (3:40 PM August 26th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • ETCO2 monitor (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP) <WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)

July 8, 2009

Urology update and medical orders

Filed under: Uncategorized — Alin S @ 1:22 AM
Blood pressure cuffs. TORTURE FOR AN AUTISTIC. I WANT THEM!!!

Blood pressure cuffs. TORTURE FOR AN AUTISTIC. I WANT THEM!!!

IMPORTANT: THIS POST HAS A GALLERY CLICK THE BLOOD PRESSURE CUFFS TO SEE IT

Tonight’s post might be a bit pissier than the rest, the reason is, the topic is UROLOGY. Today we went to my new Urologist, very good doctor though he lacked bedside manners and bedside humor, it’s like god lighten up and take some humor. Anyway he ordered some testing to further evaluate my urological issue of my bladder being so f***ing huge and this time the testing will be a LOT easier. Today I had some blood work done by an awesome phlebotomist, followed my instruction, use my antecubital in my elbow, use a small gauge needle, I might have a big vein, but I am still sensitive to blowing veins and make sure to put the tourniquet on TIGHT to make the vein close to the skin. The blood drawing was easy, afterwards I went over for an X-Ray to see how my abdomen and bowels are functioning, it’s called a KUB X-Ray in urologists terms because they usually pay attention to the kidneys, ureters, and bladder. I saw my cute and snuggly X-Ray tech James there but Tammy wasn’t there today, oh well, hopefully I will see her soon. This Friday morning I will be having an ultrasound taken of my bladder and pee stick before I pee, during my pee, and after I pee this is an alternative to the Urodynamics like I had at CMH. We stopped in at the rehab desk and have a priority visit with my Rehab Physician for next wednesday. I updated the orders chart to reflect all these changes!

I also took some behind the scenes photos in the office and with James, God all those blood pressure cuffs were tempting. I so wanted to take one. for the Pressure of course. And mom was right next to one, TORTURE I TELL YOU!!!, for an autistic at least.

I have Downgraded the Muscle Biopsy to low priority. The Urodynamics study has been DELETED.

  • Urology visit <DEAD> (DONE)
  • Kidney Blood Tests <DEAD> (DONE)
  • KUB X-Ray <DEAD> (DONE)
  • Urodynamic Ultrasound <ACTIVE> (Friday July 10th 9:30 AM)
  • Autism / Neurodiagnostic Results <ACTIVE> (Friday July 10th 12:00 PM)
  • Priority Rehab Physician Visit <ACTIVE ULCER> (Wednesday July 15th 3:00 PM)
  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • ETCO2 monitor (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP) <WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)

July 7, 2009

CT Scan done, ulcer / sore on butt = ?

Filed under: Uncategorized — Alin S @ 12:01 PM
Medical Logo

Medical Logo

Yesterday we went for my CT Scan of my knees and it ws WITH OUT contrast thank god, no needles! Yay! We then bounced over to my general pediatricians office because I have either a pressure ulcer or a skin infection on my right butt cheek, today we are going to the genito-urological surgeon to talk about my hormone issue and my urinary problems and I will also show the butt problem to him for another opinion. The GP thinks it is an ingrown hair, I think not. It’s 2 inches by 2 inches, and looks like a blister. Hmm, I say stage 1-2 pressure ulcer. Damn chair!!!!!!! Another update to follow later.

  • CT knees w/o contrast and with contrast? <DEAD> (DONE)
  • Pressure ulcer / unusual sore on butt, Emergency GP Visit <DEAD> (DONE YESTERDA)
  • Urology visit <ACTIVE> (2:30 PM Tuesday July 7th)
  • Occupational Therapy eval (monitor disease progression) <ACTIVE> (1:00 PM Tuesday July 14th)
  • New wheelchair (evaluation / ordering) <ACTIVE> (2:00 PM Thursday July 16th)
  • CT head & spine w/o contrast and with contrast (repeat due to 1 year passing since last CT series) (IP/OP) <WAIT SCHEDULING>
  • Pulse Oximeter (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • ETCO2 monitor (ordered by pulmonary) <ACTIVE> [JUSTIFICATION PEND]
  • Muscle Biopsy – See if there is a muscular dystrophy or other disease directly affecting the muscle such as progressive rhabdmyolysis. (Live – To be scheduled) (OP / IP at doctors discretion) <WAIT SCHEDULING>
  • Toxicology panels (drug & standard) – See if disease caused by toxic mutagenic agent (OP) <INACTIVE>[WAIT FOR BETTER INSURANCE]
  • ABGs draw (IP) <WAIT SCHEDULING>
  • Urodynamics study (under anesthesia or neuromuscular blockade) (repeat due to question of suprapubic catheter) (IP) <MAY BE DROPPED>
  • Echocardiogram (repeat due to 1 year passing since last ECHO) (IP) <WAIT SCHEDULING>

are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.

  • Pulmonary Functions Test (monitor respiratory status) <WAIT 3 MONTHS.. OCT-NOV 09)

July 5, 2009

Disabledplanet.net website statistics June 2009 released

Filed under: Uncategorized — Alin S @ 10:21 AM
dpjun2009usageyrl

dpjun2009usageyrl

dpdaily_usage_200906

dpdaily_usage_200906

dphourly_usage_200906

dphourly_usage_200906

dpctry_usage_200906

dpctry_usage_200906

« Newer PostsOlder Posts »

Powered by WordPress