Unhappy with this 3.0cm monstrosity
Today we called into my Enteral Nutrition supplier Apria and told them of the G-Tube problem. To save us the hassle of an extra phone call they will call and get a verbal prescription for a special order 2.8 cm tube, one cm larger than my old 2.7 cm. I can’t wait, this new tube SUCKS!
My new E-Mail Server Settings
Today I received a call from Julia my close Nursey friend in the UK who asked if I had received any of the many E-Mails she had sent over the last few weeks. I searched for them to double check and the record showed absolutely nothing. I calmly approached her to query for more information on her end and she told me that she was Replying to the FeedBlitz E-Mail system’s E-Mails, The old ReplyTo address was an arbitrary address on their server that automatically discards any E-Mails sent to it. I quickly found this as a CODE BLUE priority bug requiring fixing ASAP. It is now fixed so those of you who are mail list subscribers, and receive the E-Mails. If you want to contact me regarding a set of stories or a story simply REPLY to the message sent by my NewsBot, it will get to me this time!!! If you are NOT a mailing list subscriber (DO NOT RECEIVE E-MAILS) Then I suggest you SUBSCRIBE as it will give you a big benefit over reading on the web!!!
Unhappy with this 3.0cm monstrosity
The medical code will currently remain at code red. As stated in my earlier post today, There were three possible outcomes of today’s general surgical appointment. Apparently outcome C. came to be correct. Although, I might have been a bit happier if outcome eight was correct, and they took me in for the endoscopy today, and found out what the problem was. The problem definitely was not a G-tube too short for my stomach. I currently have a tube, that is approximately 1 inch too long. I strongly advocate against measuring for a G-tube that is longer than what you need. A G-tube that is too long, poses a health hazard! it can easily be pulled out, or otherwise damage the inner lining of the stomach! Always have a professional measure for your G-tube, and make sure to double check the measurements! Never order it to larger if there is not a size smaller! It is better to have a tight tube than to have one that is far too loose!
With all the above said, I will be scheduling the endoscopy as soon as possible. Sooner than we were anticipating probably. Since my stomach is being a pain in the ass. And my G-tube is being a pain in the belly… literally!
Orders are as follows.
are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Medical Logo
The medical code on my website was on CODE RED for a long time without me realizing it was incorrect thus I am reviewing our coding procedures. The code is currently a CODE RED due to the emergency priority General Surgical visit today.
CODE GREEN - This is probably a code we will NEVER see again. Code green used to be used when all was totally normal and absolutely no monitoring or at home procedures were needed. Since I am almost ALWAYS under some sort of monitoring and procedure this code is effectively considered retired and not our “Normal” code
CODE YELLOW - This is our “Normal” medical code. You WANT to see code yellow updates on the blog and site. Code yellow means standard monitoring and procedure is being followed and NO TYPE OF EMERGENCY DOCTORS VISIT OR SURGERY IS SCHEDULED. ROUTINE DOCTOR VISITS MAY BE ASSIGNED A CODE RED TAG IF THEIR PRIORITY WARRANTS.
CODE RED - code red is a very difficult to use code. I mainly change to code red when a HIGH PRIORITY DOCTORS VISIT IS MADE and or when a surgery is SCHEDULED. CODE RED IS NOT FOR LIFE THREATENING EMERGENCIES AND OR EMERGENCIES OF NATURE WITH LESS THAN 24 HOURS TO SURGERY OR VISIT. i.e The Baclofen Pump story and its second surgery. In the case of The Baclofen Pump story that occurred within 24-48 hours and would be a CODE RED, the second surgery should have been but was not coded as a CODE BLUE.
CODE BLUE - code blue is also a difficult code to use. it is EXCLUSIVELY reserved for EXTREMELY HIGH PRIORITY surgeries and or E.R visits or other things that require immediate attention (under 24 hours) a previous example of a code blue situation was the Second Emergency Baclofen Pump Surgery
A. NEW or OLD Tube is found to be dislocated or ulcerated to warrant emergency, blog status changes to code blue, i get admitted to the hospital and endoscopy to be done ASAP (within 24 hours) If the old tube does not come out easily or comes out very painfully or blood is present the code blue plan will likely occur
B. OLD tube comes out normally, NEW tube goes in although seems painful or otherwise abnormal, a VFRS (Video Fluroscopic Radiographic Study) will be performed, I will lay on my side on the X-Ray table and a special video X-Ray system will be booted, constantly bombarding me with x-rays and a photodetector will detect what passes through (like a normal X-Ray) at approximately 15 frames per second, at this point certain movements of the tube will be done and infusion of barium will follow along with more tube movement to see tissue and tube reaction. if new tube shows signs of ulcer or persistent displacement plan A will activate and a code blue will occur
C. OLD tube comes out normally NEW tube goes in normally or with minimal pain but still shows question for ulcer. an endoscopy will be scheduled ASAP within the next 2 weeks. blog will remain code red.
Medical orders updated as follows
are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Excuse the absurd length of this post! Stay tuned for updates!
Unlike child abuse and animal abuse (The Children’s Act and The Protection of Animals Act), there is no single piece of legislation that deals with the abuse of vulnerable adults.
We all know a vulnerable adult, a disabled or elderly member of the family or a neighbour. So this concerns everyone.
Through out out history people have abused their power like Hitler. Or their trust like Dr Shipman. Or parents like Josef Fritzl. Or so called specialist centers like the Judge Rotenburg Center. (Facebook group)
It is still happening today. Every day. Abuse takes many forms. A young man Jesse Moores tragically died. His death could have been prevented (Facebook group) if someone had just spoken out.
No Secrets is the current Government ‘guidance’ in England
Guidance does not carry the same status as legislation; instead local authorities have their compliance assessed as part of a statutory inspection process. With ‘good reason’ a local authority can ignore such guidance. As a consequence vulnerable adults do not have the same statutory protection as either children or animals.
Such crimes as mistreatment are regularly committed 67% according to Action on Elder Abuse in care settings and by carers
There is a raft of legislation keeping people safe from harm (Human Rights Act 1998, Care Standards Act 2000 and Regulations, Mental Capacity Act 2005). However, prosecutions are very low.
Most councils have recognised that protection (safeguard) of vulnerable adults is paramount and have implemented multi-agency policies and procedures to protect vulnerable adults from abuse.
It is our duty to look out for the signs and to do what we can to prevent it. Staying silent is not an option.
Vulnerable adult definition
A vulnerable adult is a person aged 18 years or over who is or may be in need of community care services by reason of mental or other disability, age or illness; and who is or maybe unable to take care of him or herself, or unable to protect him or herself against significant harm or exploitation.
Everyone has a right to:
Live free from violence, fear and abuse
Be protected from harm and exploitation
Be independent – which may involve some risk
Say ‘No’ to anything they don’t fully understand
Forms of abuse
Institutional abuse
Institutional abuse can occur in a care home, nursing home, acute hospital or in-patient setting and can be any of the following types of abuse:
Neglect.
Physical abuse.
Sexual abuse.
Verbal abuse.
Discriminatory abuse.
Psychological and emotional abuse.
Financial abuse.
Neglect
Neglect of a vulnerable adult can be any of the following:
Not having the help you need to have a bath or shower if you are unable to do so by yourself.
Not getting enough food or drink.
Stopping you from accessing needed care and/or medical services.
Not being given the medication that has been prescribed for you.
Being given medication to make you sleepy when it has not been prescribed or giving you the medication at the wrong time or in the wrong quantities.
Not getting help to stay warm and dry.
Only having old or dirty clothes to wear.
People not caring for you properly.
Professional abuse
Professional abuse happens when a professional does any of the following:
Takes advantage of their client or patients trust.
Exploits their vulnerability.
Does not act in their best interests.
Fails to keep professional boundaries.
Abuse may be:
Sexual.
Financial.
Psychological/emotional.
Physical/neglectful.
Discriminatory.
Professional abuse always involves:
Betrayal of trust.
Exploitation of vulnerability.
Violation of professional boundaries.
Domestic
Any incident of threatening behaviour, violence or abuse (psychological, physical, sexual, financial or emotional) between adults who are or have been intimate partners or family members, regardless of gender or sexuality.
Discriminatory abuse
Abuse of individual rights is a violation of human and civil rights by any other person or persons.
Discriminatory abuse consists of abusive or derisive attitudes or behaviour based on a person’s sex, sexuality, ethnic origin, race, culture, age, disability or any other discriminatory abuse – this includes Hate Crime.
Elder abuse
Can be any of the following:
Physical abuse.
Psychological abuse.
Financial abuse.
Sexual abuse.
Neglect.
Abuse can occur anywhere:
In some one’s own home.
A carer’s home.
In a day care centre.
In residential care.
In a nursing home.
In hospital.
Both older men and women can be at risk of being abused. The abuser is often well known to the person being abused.
The abuser may be:
A family member.
A friend or neighbour.
A paid or volunteer care worker.
A health or social worker, or other professional.
Older people may also be abused by a person they care for.
Financial abuse
Can be any of the following:
Someone making you take your money out of the cash machine for them.
Taking money from you.
Borrowing money and never giving it back.
Stealing your belongings.
Someone getting you to sign something and you don’t know what it is.
Someone taking your pension or other benefit.
Someone asking for money for visiting you socially.
Physical abuse
Can be any of the following:
Being restrained in a chair or locked in a room.
Punching or kicking you.
Throwing things at you.
Grabbing, pushing, poking or slapping you.
Hitting you with an object.
Pulling hair or biting.
Tripping you up.
Psychological and emotional
Hurtful criticism.
Name calling.
Sulking.
Pressure tactics.
Lying to you, or to your friends and family about you.
Persistently putting you down in front of other people.
Stopping you from seeing people you want to see, including friends and family.
Never listening or responding when you talk.
Monitoring your phone calls, emails, texts and letters.
Checking up on you, following you, not letting you go out alone.
Frightening you into doing things you don’t want to do.
Making you unnecessarily distrustful of other people.
Upsetting you on a regular basis about things that don’t matter to the extent that you may even feel unwell.
Psychological and emotional abuse is generally part of other forms of abuse such as:
Domestic abuse
Sexual abuse
Sexual abuse can be any of the following:
Someone touching you where you don’t want to be touched.
People getting too close to you.
Someone making you feel uneasy and upset.
Someone hurting you and making you feel scared.
People not listening when you say no.
Additional factors
Any of these forms of abuse could either be deliberate or the result of ignorance or lack of training, knowledge and understanding. If a person is being abused in one way they are often being abused in other ways too.
What to look out for:
Unexplained injury
Signs of fear or distress
Withdrawal
Neglect
Theft, fraud or financial exploitation
What you should do:
Do act if you suspect a vulnerable person is being abused
Do talk to the person – listen carefully
Do give the person your full attention
Do telephone someone
What you should not do:
Don’t ignore it
Don’t promise to keep it a secret
Don’t put it off (there needs to be better whistleblower provisions )
Autistic children grow into Autistic adults all too fast.I hope with greater awareness of Autistic Adults because of campaigns like the NAS I Exist and Safeguarding adult’s and better quality controls things will continue to improve.
After all we could ALL end up in a care home one day.
Safeguarding Adults is every body’s business. Your action could prevent abuse.
Every day, people say nothing!
Please say something.
You could improve someones quality of life or maybe a tragic death could be prevented.
Me outside on Flag Day, sweaty hot and happy!
99% of you who are reading this, probably did not even know it was Flag Day today. Hell, I didn’t until my friend in the UK who is obsessed with flags and is known online as “Flaggy” told me about it. I decided to go outside, it was a 75° day today and I decided that it would be comforting for me to go outside and sit around and “Sun Bathe” during that time I was talking to a few friends including “Flaggy” “Doro” and “DoorDoctor” I decided to take some pictures of my neighbors flag across the street, while showing it to “Flaggy” live on camera. We had lots of fun, and it was a warm comfortable day. I spent about two hours outside before I went inside, and I was definitely sweaty. LOL
click the picture above to go to a photo gallery, it’s not much but it’s a gallery for today.
BlackBerry Storm in Verizon box
As seen in last night’s two blog posts, I had a real bitch of a time upgrading my Blackberry to the new 4.7.0 .148 firmware. First the bastard of a Blackberry was complaining that there was not enough space on its internal memory to complete the upgrade. And then boom the upgrade was done in less than 45 minutes, a lot less than the two hours that the machine and Verizon had told me it would take. But enough of that, onto the actual review of the software’s function. Doing a battery poll on my Blackberry is not as painful as it was. The new firmware starts up a lot faster than old firmware, and it should! This is software running on a 633 MHz processor, almost that of a Windows 95 computer! Meaning I could almost load Windows 95 on this Blackberry and have it run at near native speed! So this speaks very well in the favor of speed. The first time you start up the Blackberry after this firmware upgrade, it asks you to go through the setup assistant again, I suggest canceling this and setting the do not remind me to do this option. Just turning the Blackberry onto its side, demonstrates the firmware speed increase. You will notice it is a lot more responsive in turnover situations. I still have yet to do in-depth testing with the keyboard, however some basic testing while I was typing some e-mails, some being pretty long, and rotating device intermittently, the device rotated the screen nearly instantly which is the way it should be on a 633 MHz processor! Applications sport much quicker startup times, and I don’t imagine myself having to do a battery pull as often. With the new firmware, I feel much more secure in relying on my Blackberry, as a communication aid, medical device, and navigation aid. Having a blackberry as a normal person is different, let me having my Blackberry, my life could depend on this Blackberry at any moment. So it needs to be reliable, durable, robust, and secure. This firmware further salutes RIM in their promise of devices that can be relied upon. This is why Pres. Obama loves his Blackberry, and this is why I love mine!
Go Blackberry, go RIM!
Bang BlackBerry Here Pad
Apparently they want you to THINK the upgrade its self takes 2 hours, Not true. For me it took a little over maybe 45 minutes from the second I touched “Start Upgrade”
Will have an opinion tomorrow. Goodnight!
Bang BlackBerry Here Pad
After nearly 4 hours of slaving over my BlackBerry storm to get 4.7.0.148 software onto it. I ended up having to DELETE Microsoft Word Mobile Edition, Microsoft Excel Mobile Edition, Microsoft Powerpoint Mobile Edition. All of which I don’t really care about and won’t reinstall after the upgrade. But what pisses me off is I had to delete Google Talk, which I use to talk to some of my open source geeks who have to use a Jabber.cc account to stick to their “religion” of open source software. And then I had to delete Youtube which I like having there for a reason, hmm , boredom, Youtube, it’s a real help. And then the major piss off of all time was that I had to delete Visual Voicemail, a piece of software that Verizon themselves provides for the BlackBerry storm for it to have enough room to complete the upgrade. Approximately 1-2 hours of this slaving was spent fighting “You need to clear 1.5 MB of space for the upgrade to continue” “You need to clear 875 KB of space for the upgrade to continue” “You need to clear 843 KB of space for the upgrade to continue” The increments annoyingly getting smaller and smaller. I was seriously close to taking out a notepad, drawing the above stated things on it, and banging my BlackBerry atop the pad. But low and behold after a $@&* load of deleting stuff it finally FREAKING WORKED. Since it is 11:30 PM here right now and my BlackBerry will be spending the next 2 hours upgrading it’s self I can’t really give my opinion on the new software, though other people are really clamoring over it. InformationWeek Of course with all types of gadgetry that I review, I will make sure to have my full opinion on the new software tomorrow.
My new MacSpeech Dictate 1.5.1 Upgrade Kit
Today I received in the mail my new MacSpeech Dictate upgrade kit. I went from an older version to 1.5.1, I am really happy about this new upgrade, it is faster, more reliable and it has its own built-in vocabulary editor finally!!!
I took a whole gallery of pictures of the Unboxing, and a few screenshots of the installation.
This package upgrade cost me $50, so if anyone wishes to donate to help me absorb the cost of this assistive technology expansion please do.
Click the image above to go to the gallery!
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