Me with my Neoprene on and the belts tight!
This whole week I have been feeling kind of “blah” at certain times, slightly depressed but not severe. When I slept in my 8 layers I noticed I was very happy and alive and free feeling. I keep learning more and more ways to use my pressure hungry brain to an advantage to help me sleep and get through a day. Yesterday I had a sudden drop and felt like crap for no reason. I thought for a bit and said hmm I wonder if leather belts are good for giving deep pressure, I mean if people wear them tight around their waist to keep their pants up I am sure they will work as a pressure device.
So I grabbed two leather belts and got to work. First I tried it with no shirt on so I could see what I am doing and where the placement of the belts is. I made them as tight as my muscles would let me right off the bat because I LOVE deep pressure. The feeling of depression slowly over the next 15 to 30 minutes turned into a feeling of happiness and relaxation. I decided to then try it with my Neoprene shirt on. It felt real good both ways. I can’t really say which way was my favorite. If I am having a hot flash then with a plain shirt definitely. If I am cold with the Neoprene definitely.
I also noticed that putting the belt on OVER my G-Tube port tightly helps reduce the pain caused by the G-Tube.
I slept like this last night hehe.
The pictures are across the jump, click the photo to see them.
My nipples do show in this picture, If you object to seeing me topless then do not view the pictures.
Me in my lead apron with 7 layers beneath
It is quite rare that I usually take you guys behind the scenes into how I sleep. However this is one of those rare times. As you can see from the image caption above, “me in my lead apron with seven layers beneath” I have eight layers of clothing on in total.
You are probably thinking I am absolutely nuts. But in fact I will explain something here. As some of you may know I am diagnosed with autism, and for those of you who don’t know what this post to be your informing guide.
Autism mainly affects my sensory processing, but it also affects me socially pretty severely. But this post is going to focus mainly on sensory processing and what happened last night.
Last night around one o’clock in the morning, I had finished all of my business on the computer and felt that “accomplished” feeling, thus I had no interest in continuing on the computer.
What does a bored autistic with severe sensory integration disorder do at one o’clock in the morning when they can’t sleep but want to relax and go to sleep.
A normal person will just lay in bed wait about 15 minutes and fall asleep. For someone with autism and also other sleep disorders it is much more complex.
For me to sleep I need three things, I need it to be dark and quiet in my room. I need it to be cool, in air temperature. And I need pressure and warmth on my body, sometimes I need that pressure and warmth to be very intense.
Last night I was in that real autistic sensory exploration mode and also since a friend of mine mentioned that layering many layers of clothing is good deep pressure and high heat I decided to try it out, although I took it to a high level.
I started by trying on two polyester silky shirts and then my Neoprene shirt, that felt good and tight and warm but I wanted more!
So I took it all off and I started with my Neoprene shirt on inside out, which is much hotter, sweatier, and stickier feeling that wearing it the “right” way.
Then I put on a Polyester stretch turtleneck, I love the high collar on these since to my neck the material is a “Known” material and a lot of materials are “Uknown” and cause spasms in my neck due to my sensory disorder.
After the Polyester stretch I put on two silky Polyester shirts, non turtle necks, one long and one short sleeve.
In addition to that I put on my PatientsLikeMe.com promo T-Shirt to warm things up even more.
I was already starting to feel very warm at this stage but still wanted more more and more, my autism just kept telling me to keep going and so I did.
I added my blue Rubberized Nylon raincoat which is very warm and then added a White Sox jersey button up shirt thing.
There was one cold spot I had, my hands, so I looked up on my shelves and came across some latex gloves and figured, what the heck I’ll experiment here, I put them on and then my Neoprene gloves over them.
The ultimate topping off occurred when I wrapped myself up in my 30 pound lead apron / lead body wrap and shortly after that, fell asleep.
I woke up very early today in comparison to others for two reasons, one because I had such a restful night of sleep and also because of today’s G.I appointment as overviewed in the previous post.
Click the picture for more pictures!
Medical Logo
Unremarkable GI visit today, got referred to general surgery for the endoscopy as it is outside of his scope of care (pun intended)
are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Rehab visit with Dr. Sun went well today, although a few mistakes on the forms needed to be cleaned up but we are headed back to the Yacktman Pavilion tomorrow so I am gonna just track her down and have her sign the fixed forms.
Tests / visits / devices ordered are
are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Tests / visits / devices ordered are
are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Vote now! This poll will expire Tuesday next week around this time where I will deactivate the script / delete it and give the final vote counts. This poll will help me decide if the higher frequency oh Photo Gallery Posts is worthwhile! My vote is obviously yes.
After voting to see results you may need to refresh the page, this is a bug in the poll software, I have no control over that.
Me on the lift at home
Today we went to dinner at Texas-De-Brazil which is a Brazilian steak house thingi. They had lots of cool stuff there, I drank a Virgin Bloody Mary which was awesomeness in a glass and had some Smoked Salmon with lots of lemon. We got to meet a friend of ours there which was really cool and ironic at the same time that we got seated at one of her tables. Anyways click the pic above for more pictures, not much else to talk about here.
Me on the way getting into the van to head to the hospital (click for big version)
Yesterday I finished all the neurology testing to change my PDD-NOS (Autism-NOS) diagnosis into a more specific diagnosis if possible. The legal results will be out and released within the next few weeks as soon as they are processed.
After the neurology testing was completed as shown on yesterdays post we went for the X-Rays to check for full blown pneumonia. Thankfully nothing is showing up on the X-Rays so it’s still that pre-conversion Aspiration Pneumonia. Whatever, I still feel like absolute crap. Second series of antibiotics and still have trouble speaking because of the cough. Grrrr.
Order changes are as follows
Tests / visits / devices ordered are
are also waiting on a few other things to be ordered after the completion of these, the next order batch is. All of the below are considered dead until converted to live orders.
Wow, I can’t believe this I am well over a month behind for statistics. Apologies for the screw up.
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