Alin's Site

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I am home as of about 6:00 PM. There is a lot of medical stuff that needs to be done this week. Follow up appointments and the such. We also have to work more on the mattress and stuff, and also we need to get a whole new bed so we can get height electronically adjustable since my arm strength is plummeting and I can’t push the syringes easily enough anymore and mom cannot bend to do things. So we need to get an upgraded bed. And also we need to get a bed scale, we have to keep track of my weight and I can’t stand on a regular scale. All that junk aside things are going well with the pain killer patch.

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Everything is still fine over here. We are slated to leave tomorrow!

Our pulmonary specialist that we are scheduled to see on the 27th of July came to see me in my room and wants me to possibly have CPT done (Chest Percussion Therapy) It is designed to help slow progression of respiratory failure symptoms, he also wants me to get some other things which I will discuss in more detail after our visit to his office.

Moms friend came here today and gave me a giant “koosh” type ball that I have been obsessively rubbing for the last several hours, it feels nice hehe.

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We are still at the hospital. So far everything is going as planned. We are very likely going to be out by Sunday!

Sorry for the ultra lame short “headline”

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This morning we called the hospital as we were told to do so. They had a bed available so we packed our bags and arrived around 1:00 PM. We will be in for a few days. I will keep you posted. Today we had an EEG and the new painkiller patch is now on. More doctors will come see us tomorrow.

Arlington Heights Bowling Lanes

Today I went to bowling since we did not admit to the hospital today due to no beds being available. Hopefully one will open up tomorrow morning according to the charge nurse we spoke to. I got some video at the bowling today, the video is available by clicking Youtube in the menu to the left side of this post and all other pages. Today I had a great time bowling especially with Brianna, she is really fun to be with. I made some new RECORD scores. Of course these are not records compared to back when I was able to walk and everything. But compared to the first time bowling from a chair it is awesome.

My scores for the two games are as follows    

Game 1 = 119 Game 2 = 86

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The pediatric floor is full as of today, and so they could not find a bed for me today. They have some discharges going out tomorrow, so more than likely and almost defininitely tomorrow morning-ish. Due to the fact of this, I get to go bowling tonight! Bowling update, count on it!

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The domain is fixed!

The reason the domains are so fragile and easy to break unlike the www.gosumosushi-steak.com domain is that the www.gosumosushi-steak.com domain is locked onto the server using an “add-on slot” that allows it to connect directly without using dirty redirects. It costs 35 dollars per domain for an “add-on slot”

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The www.www.alinssite.info domain is broken right now. Apparently a redirect somewhere got broken for some reason. http://www.alinssite.info still works as that is a fail safe URL and is unbreakable. Even if that broke it would still be accessible through http://iguido.com/alinssite/

This issue will be fixed as soon as possible! I am working on it!

The front page picture has been changed to prevent “stale” look.

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We are home from the doctor. My pediatrician said, if your rehab doctor wants to admit you then she needs to admit you, I don’t know how to write up an admission order for painkiller titration. (dose setting) So we called my rehab doctor and she said that she does not do admitting, she only admits for the rehab center, not general medical. So we will call my doctor tomorrow morning as it is already kind of late to admit. She said that we will tell him that she will be the acting physician (consult) but he will be the admitting physician.

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I am heading to my doctor early afternoon, we spoke to my rehab physician yesterday and we all decided that number one, the only pulmonologist at Lutheran General Childrens Hospital that sees people in the office is off till July 27th which is too far to wait. And she also thinks an office appointment is worthless as we both agree’d that I should be in the hospital for my first patch to see if I have a reaction, since the most common reaction is respiratory failure in patients who have respiratory problems to begin with. I have respiratory issues to start with so we really have to do it in the hospital, just in case something does go wrong. Since doing it at home could be catastrophic, at the hospital they got ventilators all over the place ready to go for an emergency.

More updates to follow